There
are many kinds of arthritis. |
Systemic Juvenile Rheumatoid Arthritis |
If you ever wonder what you will be able to do, here are some cool things other people with SJRA have done: Watch birds in a birdfeeder Collect stamps Go to college Ride a bike Go to parties Paint pictures Build a website Sing Write stories Go on dates Work in a lab Get good grades Start your own business Go camping Have lots of friends
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References Many websites lump the several most common forms of Juvenile Rheumatoid Arthritis--JRA-- together, so you will have to dig down to find information specifically about Systemic JRA, or Still's Disease. http://kidshealth.org/parent/medical/arthritis/jra.html This Kidshealth for Parents website about JRA is directed toward parents. Solid information in clear language about what JRA is, causes and treatments. http://www.arthritis.org/conditions/DiseaseCenter/jra.asp The Arthritis Foundation has a lot of basic information about JRA. http://www.merck.com/mrkshared/mmanual/section19/chapter270/270b.jsp The Merck Manual has detailed technical information about JRA. If you know medical terminology, or are interested in learning, this is the definitive place to go. http://www.stillsdisease.org/still's_disease_info.htm This is generally slanted to adult-onset Still's disease, which seems to be extremely rare, but overall, it has a really good overview that also applies to people who get it as kids. Apparently written by someone who has it. The section on planning is especially useful.
How many cases? Talk about a ballpark figure--depending on where you get the numbers, there are between 20,000 and 75,000 people in the United States with SJRA |
| Disclaimer: The stories and information on these pages are intended for educational purposes only, and are not intended to replace the services or medical advice of a trained health professional. If you have a specific medical question, you should contact your doctor, nurse, or other professional. | |